The Parkinson’s disease journey affects not only the person diagnosed but also their support system. Family members and friends can play a role in the management and impact of the condition, so it’s important for them to have a basic understanding of what a Parkinson’s disease diagnosis means.
Parkinson’s disease is a progressive neurological disorder that affects movement. Symptoms and daily struggles may include:
- Balance difficulties
- Slow movement
- Stiffness
- Tremors
The progression of Parkinson’s varies among individuals and treatment plans are often tailored to manage specific symptoms.
Receiving a Parkinson’s diagnosis can be difficult and may require changes to daily routines. Leaning on the support of family and friends is crucial for coping with this diagnosis.
To best use your family and social network, create a plan and identify the best ways to connect with them. Be specific about what you need. It’s also a good idea to consider schedules and time constraints, and have a backup plan.
If you’ve been diagnosed with Parkinson’s disease, keep the following in mind.
Create a plan
As with any challenge, it’s easier to work through it when you have a strategy. Take these steps to create a plan that fits your lifestyle and diagnosis:
- Make sure your home is safe. Declutter each room to reduce the risk of tripping or falling. If grab bars or handrails would be helpful in the bathroom, make sure they are securely installed.
- Create a calendar or download a scheduling app. This can be shared by caregivers, family members and others. Place medication reminders and doctor’s appointments on this calendar. Keep it updated as things change.
- Use a daily or weekly routine. This routine would include setting times for meals, scheduled activities, rest periods, exercise and prayer.
Maintain a healthy lifestyle
It’s important to maintain an active lifestyle after a Parkinson’s disease diagnosis. Exercise routines and regular physical therapy can help ease muscle stiffness and posture issues, as well as improve balance and mobility.
While exercise is not a cure, it can provide some symptom relief. A balanced diet and sufficient rest will also contribute to your overall well-being.
Focus on your mental health
Receiving a Parkinson’s diagnosis can put a strain on your mental health. While the new diagnosis will pose challenges, maintaining a positive outlook can contribute to your overall health. Incorporating gratitude into your life can help provide balance and help you discover blessings.
Practice focusing on the things you can control and be ready for changes that may arise so you can adapt. Additionally, consider joining a support group as it can provide emotional support and valuable insights from others facing similar challenges.
Lean into your faith
Remember that God has a plan, and that what feels like the end is often just the beginning. He is always directing, leading and providing. “Forget the former things; do not dwell on the past. See, I am doing a new thing! Now it springs up; do you not perceive it? I am making a way in the wilderness and streams in the wasteland.” Isaiah 43:18-19
Live your life, but plan ahead
Go out and live your life. Keep doing what you enjoy as long as the activities are safe. This is a good time to start planning for the future. Identify legal and financial issues, including household and medical expenses.
If you don’t have a power of attorney in place, start thinking of who would fill that role. You may also need to explore additional care options for the future, such as home health, assisted living or long-term care.
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